Well another day down and not much to say except that things aren’t going well. We have gone from pillar to post and our little guy is just not a happy camper at all!
We had him at our paed yesterday afternoon again and he confirmed an infection and recommended that we finish the course of treatment for the antibiotic. He has prescribed further antacid for Tayden, with his Losec now increasing to 2x a day, continuing with the gaviscon twice a day on the wound itself. We have spent more than R2000 in the last week to try and get to the bottom of this, from new antibiotic creams to antibiotics, dressings, plasters, lotions etc. One wouldn’t mind if there were actually progress but that is not the case.
I have had so many people contact me and try to help and we so appreciate it, yet we are still sitting at the same place we were a week ago – a child in pain, a peg site looking so red and angry that is seems as if we have poured hot water over it. The rep that fits the peg insists that it is the correct size, yet he leaked so much today that it literally leaked through three shirts, two cotton wool discs and onto his tracksuit pants. Not normal really!
I go to paed who speaks to surgeon, who consults with company who supply peg who then say all is well and it is the never ending circle of frustration that just goes round and round. We never seem to get to the end of it, or find a solution. We try new options but nothing is working. I am beginning to feel like a paranoid mom and a stalker because I am on the phone to the paed everyday, with new problems. The site has started leaking blood on and off but apparently not enough to cause a problem. Now for me as a mom, any blood leaking from ANYWHERE on my child’s body is a problem especially when he keeps telling me “Sore! Sore!”
I seriously just considered taking out this whole peg and saying that is it! Enough is enough! But then l look at Tayden and acknowledge the progress that we have made, the weight he has put on and the fact that we have to buy longer tracksuit pants (whoop whoop!) and I realize the peg is the correct step at this point. But that doesn’t mean it is the easiest step.
What we do need to find an answer to is the constant infection that he is experiencing, the leaking, the raw burnt skin that is so painful for him. As a mom, I just hate having him in so much pain and there isn’t a single thing that I can do about it.
For Rob and I, it is like being stuck between a rock and a hard place – with the peg, there are so many issues, without the peg, we have been told in no uncertain terms that we are putting Tayden in danger.
So, for us there is no choice. But why oh why does it have to be so tough on our little guy?
We had him at our paed yesterday afternoon again and he confirmed an infection and recommended that we finish the course of treatment for the antibiotic. He has prescribed further antacid for Tayden, with his Losec now increasing to 2x a day, continuing with the gaviscon twice a day on the wound itself. We have spent more than R2000 in the last week to try and get to the bottom of this, from new antibiotic creams to antibiotics, dressings, plasters, lotions etc. One wouldn’t mind if there were actually progress but that is not the case.
I have had so many people contact me and try to help and we so appreciate it, yet we are still sitting at the same place we were a week ago – a child in pain, a peg site looking so red and angry that is seems as if we have poured hot water over it. The rep that fits the peg insists that it is the correct size, yet he leaked so much today that it literally leaked through three shirts, two cotton wool discs and onto his tracksuit pants. Not normal really!
I go to paed who speaks to surgeon, who consults with company who supply peg who then say all is well and it is the never ending circle of frustration that just goes round and round. We never seem to get to the end of it, or find a solution. We try new options but nothing is working. I am beginning to feel like a paranoid mom and a stalker because I am on the phone to the paed everyday, with new problems. The site has started leaking blood on and off but apparently not enough to cause a problem. Now for me as a mom, any blood leaking from ANYWHERE on my child’s body is a problem especially when he keeps telling me “Sore! Sore!”
I seriously just considered taking out this whole peg and saying that is it! Enough is enough! But then l look at Tayden and acknowledge the progress that we have made, the weight he has put on and the fact that we have to buy longer tracksuit pants (whoop whoop!) and I realize the peg is the correct step at this point. But that doesn’t mean it is the easiest step.
What we do need to find an answer to is the constant infection that he is experiencing, the leaking, the raw burnt skin that is so painful for him. As a mom, I just hate having him in so much pain and there isn’t a single thing that I can do about it.
For Rob and I, it is like being stuck between a rock and a hard place – with the peg, there are so many issues, without the peg, we have been told in no uncertain terms that we are putting Tayden in danger.
So, for us there is no choice. But why oh why does it have to be so tough on our little guy?